Chapter of the Week

Every Friday, I get to hang out with a few other writers and read the latest chapter of my book to them. The hanging out is done online right now because of the pandemic, but it’s still enough for me to make sure I at least revise a chapter for the week.

I’m at a stage where I’m going through the book chronologically and doing tweaks and consolidations. It’s the first time my group is hearing the chapters in order, because the first round of chapter segments were created and shared in haphazard fashion. Sometimes they skipped decades forward or backward.

Going in order is harder. It’s scary to be marching forward, one chapter a week, knowing that at some point I’ll reach the end of pre-written stuff for revision and have to write a few missing chapters at the end. Then an introduction. And then it will be a fucking manuscript.

And I’m doing this during the pandemic, with the future so uncertain, and my critical voice shouting that no one’s going to want to read anything about any other subject besides this for the next indefinite number of years.

Calla Lilies

(Reposted from my archive, Not This Song)

My daughter brought me calla lilies on Mother’s Day.

It was 2011, and instead of carrying them into my room or proudly displaying them on the breakfast table she held onto them tightly during a long car ride.

She and her father signed in and had the bouquet inspected, then waited while I was notified that my visitors were there. Only then did she get to give them to me. Only then did she get to be hugged, and hear how beautiful they were, and see me read the little poem she wrote on the homemade card shaped like a butterfly.

That is Mother’s Day in rehab, and I can never see calla lilies without thinking about that day. I wasn’t the only one getting cards and flowers, and I wasn’t the only one to gaze at them with a mixture of emotions too tangled to articulate.

Mother’s Day is hailed by therapists as one of the most stressful days of the year for a reason–none of us is without feelings on the subject of the mother we had and/or the mother we are. Told by commercials and companies how we should feel about our mothers and children, we writhe in discomfort with our more complicated internal landscape.

Complicated it may be, but it’s a pretty fair bet that being institutionalized isn’t in any of our personal “what kind of mother I want to be” manifestos. It kind of kicks things up a notch in terms of regret.

After that day’s visit was over, I looked at the smooth whiteness of the lilies beside my bed with a kind of doubled vision, seeming to see bouquets like it in many other places. I knew that many children wouldn’t get to deliver one at all due to the rules of the rehab, or hospital, or prison their mother was currently inhabiting.

I’m happy to be at home on Mother’s Day this year. Didn’t get any lilies. Don’t want any. But she can give me flowers, or a hug, or a thorough trouncing in video games, any time she wants to, because I am here.

Mothers who can’t be at home today, I remember you. I know better than to judge your love for your children based solely on where you are. Don’t give up.

Children, fathers, grandparents and all who visit, I remember you. Thank you for your love and effort.

Happy Mother’s Day.

Masks

I am sewing masks, the way many people are lately. I don’t sew very well, and I swear like Samuel L. Jackson whenever I stab myself with a pin, which is often.

I am asking myself frequently whether it’s worth the amount of time, frustration and literal blood it takes for me to produce a small fraction of what I see better sewing folks and/or those with more physical and mental stamina are producing.

It has been many years since I approached what I think of as a “normal” level of productivity. Because my disability is mostly invisible (unless you live with me) I struggle with internalized ableism and hold myself to a standard I will never meet.

I know I’m not alone. I know I shouldn’t compare myself to others. But sewing’s the least of it…I pour myself into my writing in little chunks, knowing I’ll never be able to put in the kind of hours, or networking time, or number of events others can.

These feelings are normal for me. They don’t get argued away. I just have to make sure my deeper beliefs coexist with them: Yes, what we do matters. Yes, every little bit helps. Write the book. Write the poem. Make the mask.

Holding On

So what’s the pandemic like through the eyes of a mental patient and recovering addict?

Well, there’s a lot of pressure to keep myself together, of course. Strong voices telling me this is NOT the time to have an episode or need a meds adjustment. And certainly not the time for a relapse on drugs.

It’s scary, because while not doing drugs is something I can control to a degree by practicing recovery techniques, the mental health thing is under less control. I can take my meds religiously. I can try to eat well and get a little exercise and do things that connect me to what I value. I can do all this, and it still might not be enough because neurochemical shit happens sometimes.

Meanwhile, all the “normal” people around me are experiencing levels of anxiety they aren’t used to. They need me to be functional so I don’t drain their energy away from managing their own stress.

“One day at a time,” is more real than it’s been for a while. I try to make plans…what part of mask sewing I’m going to work on today, what I’m going to eat for lunch, whether I’ll go for a walk. And while I do that I’m acutely aware of the degree of privilege I have compared to some of my fellow sufferers.

I have loved ones in my house. I have access to the medicines I need. For now, my family isn’t in danger of losing our home or not having enough food. I’m lucky.

Do you hear that, brain? We’re lucky. Now show your gratitude by refraining from any shenanigans until further notice.

Things I’m Not Doing

Right now, a drug addict paces in the ER, so desperate for a fix that COVID-19 holds no terror for them.

Right now, some sick person is waiting too long for an ambulance because two paramedics are running up to an addict’s apartment to Narcan them for the third time this month.

Right now, an addict is spamming one of their doctors’ overloaded phone lines with demands for prescriptions.

That addict could be me.

It’s been more than eight years since I got clean. Since I experienced the magic mix of luck, grace, privilege, and yes, hard work too, that helped me (so far) beat the odds.

If I were still deep in my addiction right now, I could do any of the things I’m thinking about. It would feel like a matter of survival to get the drugs I needed, and the threat of deadly illness to myself and others would feel very far away.

Someone who routinely takes a handful of pills they know might kill them isn’t exactly dialed in to any logic of self-preservation, let alone consideration of others.

I’m not doing anything great in the pandemic so far. I don’t work in an essential business like health care or food acquisition. I’m one of the many whose most useful contribution is to stay the fuck home and take really good care of myself to minimize the chances of getting sick, or having to go the ER for any other reason.

But at least I’m doing that instead of being an active liability. And if all I’ve accomplished in the past eight years is just developing the ability to be less of an asshole at a time like this, I’ll take it.

Sidelines

Yesterday, I heard an opinion that those like me who live with mental illness won’t suffer as badly during the pandemic as those who are used to being happy and productive.

The logic goes like this: we’re used to feeling bad, we’re used to sitting on the sidelines and not being able to do much, so how is this different?

I didn’t know how to react when I heard this. I wanted to talk about what it’s like to be seen as a constant liability to the world. I wanted to point out that right now a lot of mentally ill people are trying extra hard not to be a burden on an overloaded system. When their symptoms torment them, the knowledge of the crisis feeds their shame and lowers their resistance to judgment and stigma.

There is no time to be mentally ill while the world burns, the thought repeats. So what if they’ve run out of their meds, or if the only thing keeping them going was that therapist they can’t go see now.

They will not ask for help. They will try to cope as best they can. Some will fail to make it through.

The Sin of Happiness

I have a secret. A dirty, dirty secret. One that’s been embarrassing me more than my drug addiction, or mental illness, or other general faults and vulnerabilities.

I’m happy.

Writing that makes me immediately feel the need to write that I’m also sad, frustrated, angry, worried, afraid, et cætera. As is normal for the times we are living in. And those things are true.

But, at certain moments, I’m happy. And when I am—here’s the REALLY embarrassing part—I think I’m happier than I’ve ever been in my life.

The last five years have brought a flowering of creativity and the growth of a completely illogical degree of self-acceptance. Never total, never unchallenged, but there.

As the world goes to shit around me, I’m having fleeting experiences of joy and wholeness. My superego tries to tell me I’m shallow and self-absorbed for feeling these things. My heart is not listening.