Dishes Lie

(Reposted from my old site Not This Song, 2015)

Don’t trust the dishes.

Don’t get me wrong–I’m proud of being able to wash dishes. For years, it was a task shuffled off to my spouse; even more so than other mundane tasks because the specific posture and movements dishes require triggered my lower back pain intensely. Today, he can come home and have anywhere from a 75% to 95% chance of finding the sink and counter clear. Maybe not clean, but at least clear of objects.

The presence of clean dishes can, like laundry or a walked dog, be diagnostic. It can mean that I’m doing well enough physically and mentally to take positive actions. It makes sense that someone who loves me is pleased to see it.

But sometimes dishes tell gleaming, ceramic lies.

Sometimes clean dishes don’t mean anything at all, and the effort that produced them has nothing to do with how I am doing. Sometimes they’re the one task I do that day, not as a small accomplishment but as a ritual of guilt. Sometimes doing the dishes was just a postcard to a distant land where what I do means anything.

So, if your loved one is living with significant depression, don’t believe their foamy sales pitch. Don’t let the dishes convince you that things aren’t that bad. Understand that those duplicitous cups and plates don’t mean that your loved one washed their hair lately, or took their medicine, or had a day free of harming themselves.

And it’s not just dishes that can be lying bastards. Anything can. I used to meet weekly with a woman living in the most crushing, despairing gray mental landscape imaginable. The only time she left her cluttered and neglected home was for appointments related to her physical and mental health issues, but when she arrived to see me she was nicely dressed, clean and made up. Once a week, she’d dragged herself through a misleading shower, put on false-tongued cosmetics and walked into the world for a short outing before reverting to what was real for her.

People can love us, but they can’t save us. So I’m not saying that it’s anyone’s job to read our minds–I just want us, those who suffer both directly and indirectly from these scourges of the mind–to know that there’s often more going on than meets the eye.

You don’t have to have a diagnosis for this to be true, of course. Your boss who seems so full of himself cried like a baby in his therapist’s office earlier today. The guy who sold you a car spent last night compulsively masturbating to Internet porn, missing his wife who left him over his addiction. The prom queen’s bulimic, the football captain was molested; pretty much everyone has a disconnect between how they seem and how they are really doing.

I try to be pretty honest about how I’m doing–at least to the degree that I am able to be honest with myself. Even so, it’s just not possible to brief my loved ones in depth constantly; they’d be unable to function in their own lives if I did. When a family member asks how I am, the answer they get is never the whole story, and when I say goodnight in the evening there are always unread chapters.

Yes, I and others do sometimes make cries for help. But we do the opposite too. We try to look better, just a little, because we hate being a burden. Because we’re sick of trying to describe how we feel, and we imagine that the people we love are just as sick of hearing about it. We try to tough it out, and we try to do something, anything, to inject a little normalcy into the lives of those around us.

We do the dishes. And that’s a good thing, to do something. It’s better than staring at the wall.

But dishes lie.

The Other Shoe

I’ve been doing something dangerous recently: taking better care of myself.

After a very long downward spiral of diabetes/low thyroid/weight gain/depression feedback loop fun, things have begun to move in the other direction since spring. It began with a desperate, no-holds-barred attempt to bring my blood sugars under control with a change in eating–a change that, surprisingly, worked well. It accelerated when this change, somehow immune to my eating/weight baggage because it was serving the blood glucose meter and not the scale, began to have the side effect of taking off a little weight. It accelerated more when something about what I was doing affected my thyroid and my levels approached normal for the first time in years. My most recent labs are a thing of beauty compared to the values of last year.

So why is this a dangerous thing?

It feels dangerous because a part of my psyche is convinced good things won’t stay. A lot’s been written about the psychology of growing up in a household of substance abuse and/or violence, but you have to be one of us to know the sickening plunge of fear that comes when the unpredictable trouble erupts. Everything seems all right, then the floor drops out from under you and you’re in fight/flight/freeze mode. And because you’re a kid, sometimes the third one is the only available option.

Anyway, that part tends to make itself heard when things are going well. I have an inner conviction that something awful is about to happen, and when something bad does happen it’s taken as a confirmation that I was right.

The more I feel a sense of hope about the improvements in my health, the more convinced I am that some terrible punishment awaits. The resistance I battle every time I write something or do anything else positive is almost palpable. It fuels itself with everything from little symptoms to relatives’ ailments to the news:  “You, or someone you love, or the planet, is going to pay a price for your selfish behavior. It’s only a matter of time.”

Burning

I am rediscovering my rage toward addiction.

I anthropomorphize the general phenomenon of addiction; many of us do. Especially as we struggle with abstaining, it can be helpful. You want to resent something? Resent that. You need somewhere to direct your rage, your hatred, your frustration? Hate the thing that wants you dead; that wants us dead. Hate the thing that wants to eat your soul and replace it with its eternal craving.

It’s not that we deny our responsibility for our situation or our duty to keep fighting. But in the midst of the humility we need to seek and find, sometimes we need to rebel. So yes, I welcome the rage and the rebellion sometimes.

I recently spent time in the hospital with an addict who has been on dialysis for years and has now just had open heart surgery. Still on methadone, she has the accompanying high tolerance for pain meds. I listened to her repeated begging for more medication as the pain resisted treatment. I watched her be in the power of nurses–some kind, some not–who questioned the validity of every request.

I watched her frail body curling in on itself, like a leaf curling and withering in a flame. I could almost see addiction as the fire in which she burned.

And I hated that fire.

Too Little, Too Late

The phrase haunts me. Whenever I find a lump where a lump shouldn’t be, or even have a twinge of pain in an unfamiliar place, the fear comes up. I’m turning into a hypochondriac, and I don’t like it.

It’s not just that I am afraid of dying, although I am. It’s that part of me is still waiting for a judgment from the universe–a judgment saying I’ve had enough second chances. A judgment saying my current efforts are too little, too late.

I recently spent time with a fellow addict who is on dialysis. For three years, she tried to quit smoking in order to get on the list for a kidney transplant and could not do it. She finally succeeded—two months before a heart complication showed up and derailed the whole process. Too little, too late.

My blood sugars are lower than they’ve been in a long time–but with every exam I fear the onset of some complication born during the less controlled times. My weight is improving slowly from the place it reached last year–but with every sore knee or backache I fear that I’ll never dance again.

It all feeds into the roar from the ever-present peanut gallery that observes my efforts at writing: You’re too old! It’s too late! There’s not enough time left to accomplish anything that is worth doing!

Pain We Obey

(Originally posted on my old site Not This Song, 2014)

Even at its worst, the pain from my cracked vertebra was not that bad compared to what some endure. But when it’s your pain, and you have it all the time, it feels consuming. I know what it’s like to plan my days around pain; to decline activities I used to enjoy. Not to be fully present in the moment because I’m counting the minutes until I can lie down and take painkillers. My addiction clouded the issue as time went on, making it more difficult to judge the true level of my pain and causing me to neglect the things that might help it.

I’m glad that many in pain are still able to use painkillers to take the edge off, even though I know the side effects can suck. I’d still be doing it if it worked. I’d still be doing it if my body and brain had not developed ever-increasing levels of physical tolerance and psychological need. Why not? We’re wired to seek pleasure and avoid pain. That’s not wrong, it’s human.

When it became clear that I was an addict with a capital A, rather than simply being physically addicted to the meds, I felt so sorry for myself. My black-and-white thinking painted the future as an infinite desert of unrelieved pain and bleak depression. It felt so unfair. I had to change my attitude a lot to have a chance of staying clean, as I mention in Compassion With A Twist.

When I became willing to live, and went to rehab, I was told that for every year I had used opiates it would take about a month clean to figure out my true pain level. I’d used them for eleven years. Didn’t sound like much fun. Rehab, with its constant classes and groups, was very physically challenging for me. I’d sit on pillows, rocking and fidgeting often, feeling as if someone had jammed a screwdriver into the base of my spine. I must have dried ten thousand dishes, because it was the only one of all the chores that I could do without triggering my back too intensely.

Today, I can say with gratitude that it appears the doctors at rehab were right. My pain level is far lower than it was before I got clean. I still have occasional episodes of bad back pain, but I pause and remember that I used to feel that way all of the time. Recovery has also brought me other improvements in health that lower my pain, such as weight loss and the ability to exercise more. That’s only my story about recovery, and I know that not all pain is the same.

Living with chronic pain, like living with mental illness or being in recovery, opens us to trying things that might not have been on our agenda. Spiritual exploration. Meditation. Trying to find and do small things that give pleasure in the moment. Examining our ideas about what we are if we’re not our jobs or our productivity. All of you who make this necessity into a quest for growth inspire me: how amazing it is that we perform, however imperfectly, this mysterious alchemy that turns pain and despair into something beautiful.

“To goodness and wisdom we only make promises; pain we obey.”
–-Marcel Proust

Are We Disposable?

(Originally posted on my old page Not This Song, 2014)

It’s a selfish question that hovers around the edges of my mind when I think about the state of our world. I’m not involved in politics, and I tend to be ignorant of many topics that speak of important developments–I don’t like that about myself, but it is my truth. As my readers know, there are times when my main contribution to society involves working on ways not to be an active drain on it.

Those who share some of my issues are often seen as an impediment to the prosperity of others, and certain voices try to shame us when we use the services our governments may provide to care for those who have trouble caring for themselves. I’d like that to be different, but I don’t imagine it will ever be uncomplicated.

In the end, we are all still animals competing for resources, and only the trappings of civilization introduce the idea of giving any resources to the helpless. Some have said that the measure of a civilization’s advancement is related to how much, and how well, they care for their children, their sick and their elderly.

Whatever one thinks about the world situation, it’s pretty clear that overpopulation will continue to be a problem. Resources will be at more of a premium, and there will begin to be more sorting of which kinds of sick or disabled are worthy of help. Mental health may not be highest on the list. Addiction-related issues are likely to be even lower, since addicts are usually seen as deserving their suffering.

This, from a Darwinistic point of view, may be a regrettable but unavoidable thing. But how much should we resist its progress? How much should we fight to be seen as something besides a liability? Is there a place for us in the future?

Sometimes, when my mind is spinning its catastrophic phantasies, I go postapocalyptic and imagine how long I, and many I care about, would last. I always imagine myself as a liability to whatever group I’m with, unable to function very well without my meds, or unable to see because my glasses got broken. I see myself as useless, without a lot of physical strength or swiftness to build or get things the group needs. I see myself as the first to fall behind and become lunch for zombies–unless a friend gives me a helping hand.

And why should they?

Why should they, unless we have some kind of value that isn’t strictly practical?

Why should they, unless those crowded barracks or underground warrens need us? Unless humanity is incomplete without us? Unless there’s a spark that’s worth maintaining, a spark worth a bit of food or a place near the fire?

Why should any society help its disabled, even when a cold equation might say the help isn’t bringing a sufficient return?

I got on this subject with my therapist during one of my dark and hopeless spirals recently, and we talked about the idea that humanity, by nature, will always need its shamans, its poets and its weird people in general, as well as the wisdom of its elders. “That may be true,” I said, “but you can’t deny that in a crisis state the strong and able will be valued most. The women who can bear healthy children, the physically strong, the mentally stable: these are the ones who can outrun the zombies or will get rescued first. You can’t deny that I’ll be one of the first to go.”

Then he told me that, although it might be true in some situations, it doesn’t mean I deserve it. Then he said something that cheered me up: he told me that if it does happen, maybe I’ll discover that the zombies are in need of poets too. Feeling better, I began to imagine my new dream job as Poet Laureate of a zombie city.

I don’t know if we are disposable. I don’t know, not for sure, whether our existence has intrinsic value. But I do exist, and I am grateful for it, and I have a daughter for whom I want to model values of love and not shame. I want her to see me doing my best, and believing I have something to give the world, so that she might learn to believe the same thing.

So I send love to all my peers, and invite us to go down swinging if the time comes, and hold our heads up until then. As a token of my affection, I enclose the opening poem from my potential future body of work:

Brains

Arrrgh brains brains
Brains gurgle thud howl
Brains brains crunch splat
Brains brains brains.

Estimable

(Originally published on Not This Song, 2013)

The good news is that I’m dressed and I’m wearing shoes. I took my vitamins, ate what I’m supposed to and I’m ready to tackle the rest of the day. The bad news is that it’s 1:47 p.m. where I am.

What is success, and who decides the difference between success and failure? I’ve had to change my ideas about it several times, because the alternative is self-loathing and despair. I’m honestly able to give myself credit for the good things I manage to do, and the harmful things I manage to refrain from doing. Sometimes. I compare myself to other people less often and less harshly than I used to. Sometimes.

I’m honestly pleased with myself for getting through my latest severely anxious phase. I’m pleased because I didn’t lose sight of the big picture and I didn’t do a lot of things to make it worse.

An accomplishment–but not the kind I can put down on a resume. Not the kind that makes good party conversation. Not the kind that comforts me a lot when I hear about friends and former classmates who are doing things…who are having accomplishments that can be listed and quantified.  During college, and later, I got to know some people who forged on and now do some pretty neat things. One works for NASA. A few others are scientists doing research with major institutes. Several are kick-ass teachers helping the next generation have a chance to learn. One’s an amazing minister and social justice advocate.

One of my biggest regrets about the last ten or twelve years is that I drifted further apart from many of these people. Inertia and laziness played a role, but most of it was my own insecurity, because I thought of them often. I never knew what to say when people asked me how I was doing, and I hated the idea of being seen as the “one who had so much potential.” I convinced myself that I had little to offer, and that they were too busy with their important and successful lives.

I was wrong. I lost touch with our shared essential humanity…I objectified them by forgetting that they have their struggles too, and I didn’t have the courage and humility to keep offering myself and let them decide what they wanted. As I grow, I hope to work on this…I don’t expect to be able to repair all of these relationships, but I want to become the kind of person who does things to show I’m thinking of them and I care.

This means I have to continue to work on my own insecurity, and learn to view myself as having something to offer even though it’s something different. It’s back to evolving a standard of success for myself, one that fits with who I am, what I have to work with and what I believe. One that will inspire and drive me, but not be used as a tool for self-shaming.

The psychologist Karen Horney once said “If you want self-esteem, engage in estimable behavior.” I love that quote because it makes it clear that building a good view of self isn’t about rubber-stamping all of my flaws…I don’t want to feel great about myself when I sit on the couch and do nothing. Compassionate, maybe, but not admiring or self-satisfied. The way to feel better about myself is to get up from that couch and do something, anything, that fits with my values.

Karen Horney didn’t define what “estimable behavior” is, that’s for me to do. If I’m in a crippling depression, I have to accept that dragging myself outside or to a meeting qualifies. If I’m having an anxiety attack, I need to give myself some credit for writing about it, and cutting out collage pictures to occupy my hands, and being honest while it was going on. All of the things I am doing that are out of my comfort zone are estimable in their own way, if I can avoid comparing them with someone else’s version.

This is my fifty-third post on Not This Song. That means that in the last three months I’ve written more than fifty essays. Created fifty things that didn’t exist before. Opened up fifty times about some idea that has meaning for me. Would anyone care to guess how many pieces I wrote in the previous five years? That’s right. Zero.

I will be proud of this.
I will learn to admire the accomplishments of others without turning them into a condemnation of my own.
I will allow my essential self to purge the poisons of envy and shame from me.
I will.
Even if it takes more than one lifetime, there’s no better time to begin.